Uncle Lewy

Living out loud with Lewy Body Dementia

a very personal journey. Matt, CJ and Sheba….

This started spontaneously, part therapy, part keeping our peeps informed. I am finding my voice, evolving in this. The perspective is very much from my, CJ’s, perspective; the caregiving wife.

subscribe to follow…..comment to join us…..each eye that reads, is appreciated. This is a lonely making disease. Sharing moments is a bit of a sole suave.

Posting pace

I am new to this writing thing

It won’t be long till I post my 60th blog

Who would have known? Not me!

How this happens has definitely evolved, is evolving

I struggle with that

Shouldn’t I select one way and stick to it?

I am so used to structure, accounting has structure

I’m venturing deep into the other side of my brain, the creative side

But the other side keeps wanting to be in control

And so it goes

I sometimes create in a flourish, drafting several blogs that are lined up for publishing for days out

And sometimes, I am dry, the words don’t come

Sometimes, that’s because there is no quiet time, we must get up and go

Sometimes, I just need to be silent, listen to myself, rest

At those moments of doubt, when I think I need to pump a post out, I remember Kathy’s words, she said I don’t need to post everyday, its ok

So there you have it

For those of you that check in when this blog goes silent, thank you. Keep doing that. It means a lot

More than I can post about……

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