Uncle Lewy

Living out loud with Lewy Body Dementia

a very personal journey. Matt, CJ and Sheba….

This started spontaneously, part therapy, part keeping our peeps informed. I am finding my voice, evolving in this. The perspective is very much from my, CJ’s, perspective; the caregiving wife.

subscribe to follow…..comment to join us…..each eye that reads, is appreciated. This is a lonely making disease. Sharing moments is a bit of a sole suave.

Roller coaster

This weekend was a bit of a roller coaster ride

Some highs, some lows, a few unexpected turns

Saturday began with a punch list review of fix it things for our California house

Yes we are renting….so I am grateful this isn’t my punch list to manage, but it was still exhausting

Then, our Virginia house had an open house scheduled for the mid afternoon

I did what I usually do, adjusted remotely the AC to 71 degrees so that it would be a nice, cool place for prospective buyers to walk into

After about 30 minutes I checked the AC temp to make sure it was getting to the level it needed to be

The temp was going up, not down! What??

We just had the HVAC system serviced Thursday, like 2 days ago, this shouldn’t be happening!

I called the HVAC servicing company; someone could come over later in the day, but that would be after the open house

Argh…..I stressed that anyone who came to the open house would think there was yet another thing wrong with this house and be discouraged

But there was nothing more I could do……

So Matt and I took Sheba on one of our favorite hikes

About midway on the hike I stopped to watch the cameras we have in the house to gauge the open house activity

We had several couples walk through, take some time, so that seemed positive

It was a very warm day in Sonoma, so when we got home, I got into the pool to cool down

I got my book and got on my favorite floatie, trying to distract myself

The HVAC tech who serviced the units on Thursday called, he had been assigned to come over to check later that day

He said “I noticed that the master AC switches were off when I was there. That could be why the AC isn’t responding”

This information, this call, came 5 minutes before the end of the open house

Sorry, who in their infinite wisdom turned off the master AC switches without so much as a word to me?

My agent was recovering from a bug he caught on a recent vacation, so he had another agent sub for him at the open house

I called my agent to ask for the telephone number of the sub so I could ask her to check before she left the house

My agent and I talked for a bit about the open house activity, so by then the sub had left our house

So he got in his car to drive over to check, he lives near by

He said “you know, I usually think to check the master switches for the AC but I didn’t this time earlier”

Argh!! I felt failed twice!

The only thing that kept me from losing my mind, literally helped me keep my cool…..

I was commanding my world from a floatie in a pool, in beautiful Sonoma

The contents of the situation was annoying, but the present framework I was dealing with them from was nice

My secret, and frankly, my suave

What was done was done at that point

The switches had indeed been turned off by someone, who knows who…..

No one had checked, communicated, they just did….

Later in the day, I had plans to join Beth and Michael for a sound bath at Sonoma Botanical Garden

I had wanted to experiment, experience this sort of thing for several years

Yeah, you might think its a bit woo woo…..but I wanted to try

Terri came by to pick up Matt for burgers in Petaluma with her and Rick so I could go to this with Beth and Michael

The sound bath was awesome

A beautiful setting under the redwood trees

Gongs, bowls, voices, other sounds

Beth articulated it well: “it was nice to “vacate” for moment.

Focusing on the sounds with eyes closed, feeling the sounds in my body, was bringing full awareness to a fulcrum

This pushed all the worries, stresses of the day out of my awareness

Matt was in good hands, I could truly fully focus on the moment

I left feeling calmed, refreshed, more centered

When we got back, Beth, Michael and I sat by the pool in the low evening lights and reflected on the experience, shared some wine

It was a very nice way to wrap up a nice evenings

Terri brought Matt and Sheba home

I am so grateful for them!

I opened the Volvo back hatch to let Sheba out

Whew! Did she mix it up with a skunk?

Yes, Terri said. They ran around Petaluma getting the ingredients for a cocktail to de-sunk her

“We washed, scrubbed, soaked, we are so sorry!”

There was nothing I could do but laugh, it happens

They took great care of my family

I am grateful for them, not so much the skunk

Like I said, a roller coaster of a day

And that’s was just Saturday……

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