Uncle Lewy

Living out loud with Lewy Body Dementia

July 2025

  • identity

    I’ve always held certain concepts of myself in my mind Things like that. Things built on accomplishments. While I readily and willingly accepted the role of being Matt’s wife That didn’t define me Being a wife, his wife, was never about accomplishing anything It was a joining of journeys, a joining of lives 2 relatively… Read more

  • The Gate

    We have a gate now where we live It completes the fenced in yard that keeps Sheba safe Sheba can go out, do her businsess, manage the squirrels, paw around like a free mut Each time we come and go by car, we have to open the gate, and close it behind us Matt does… Read more

  • all of me

    John Legend sings: ’Cause all of me Loves all of you All your curves and all your edges All your perfect imperfections Give your all to me I’ll give my all to you You are my end and my beginning Even when I lose, I am winning ’Cause I give you all of me And… Read more

  • treading water

    I learned to tread water young In college, I learned to tread water “egg beater” style, it was a game changer Plus, for reasons I won’t elaborate on, I have natural buoyancy So for me, treading water doesn’t bring up fear or anything negative It’s more of a holding the line kind of thing Staying… Read more

  • prayers

    We need to sell the Virginia house This is the season, holding on to it through the winter adds a complexity to life we just don’t need or want The house has been so good for us Protected us during Covid with its generous yard Cradled Granny at night during her many visits Allowed us… Read more