Uncle Lewy

Living out loud with Lewy Body Dementia

a very personal journey. Matt, CJ and Sheba….

This started spontaneously, part therapy, part keeping our peeps informed. I am finding my voice, evolving in this. The perspective is very much from my, CJ’s, perspective; the caregiving wife.

subscribe to follow…..comment to join us…..each eye that reads, is appreciated. This is a lonely making disease. Sharing moments is a bit of a sole suave.

collateral damage

It’s hard to say exactly when this journey began

We know when we got the diagnosis, when we had enough info to frame questions, make decisions

It’s been 20 months since December 2023, almost 2 years

Focus has been on processing the news, learning about the disease, planning the road ahead

It took all my focus to change my mindset, consider options, communicate, execute

All along the way Uncle Lewy was up to his tricks, tripping me at every stage, not making things easy

Slowly I was loosing my partner’s ability to help…..my existence was morphing into a new role where I constantly had to pay attention, stay alert, no longer was he an independent being, no longer was I

Even now I am not fully sure I have “come up for air” yet

When there are intense things requiring full attention, something gets left behind, undone

Keeping up with my continuing ed for my CPA license got left behind

License renewal deadlines have a way of bringing things to light

Luckily, I have not been putting myself out as a CPA for a few years

The public interest that the board has sworn to protect isn’t at risk

This is an achievement, a credential, I don’t want to atrophy

I am at the mercy of the BOA now

I submitted my truth to them this week

I hope they provide a path forward to let me set things straight, clear my license status

Collateral damage

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