Uncle Lewy

Living out loud with Lewy Body Dementia

a very personal journey. Matt, CJ and Sheba….

This started spontaneously, part therapy, part keeping our peeps informed. I am finding my voice, evolving in this. The perspective is very much from my, CJ’s, perspective; the caregiving wife.

subscribe to follow…..comment to join us…..each eye that reads, is appreciated. This is a lonely making disease. Sharing moments is a bit of a sole suave.

all of me

John Legend sings:

’Cause all of me

Loves all of you

All your curves and all your edges

All your perfect imperfections

Give your all to me

I’ll give my all to you

You are my end and my beginning

Even when I lose, I am winning

’Cause I give you all of me

And you give me all of you

When this song comes on

Matt and I sing it to eachother

The composition is such that even this amazing singer, John Legend, struggles to hit a high note

It showcases such vunerability

We, not famous, not particularly good singers

Belt this song out in the studio of our car

Loud!

We together feel the committment to the other

Feel the vunerability

Feel normal for a minute

Feel the warmth of heart knowing we are together sharing this couple’s quirk

Leave a comment