Uncle Lewy

Living out loud with Lewy Body Dementia

a very personal journey. Matt, CJ and Sheba….

This started spontaneously, part therapy, part keeping our peeps informed. I am finding my voice, evolving in this. The perspective is very much from my, CJ’s, perspective; the caregiving wife.

subscribe to follow…..comment to join us…..each eye that reads, is appreciated. This is a lonely making disease. Sharing moments is a bit of a sole suave.

treading water

I learned to tread water young

In college, I learned to tread water “egg beater” style, it was a game changer

Plus, for reasons I won’t elaborate on, I have natural buoyancy

So for me, treading water doesn’t bring up fear or anything negative

It’s more of a holding the line kind of thing

Staying afloat, comfortably

No strain, generally can win the contest for treading the longest, even now

I do associate treading water with staying still, not moving forward

Sometimes, on this journey, especially when family and friends are near, directly involved in events of the day

I feel I am treading water, head high

Safe, out of harms way

Maybe not making progress forward on anything

Not appeasing the “get it done” aspects of me

But not drowning in the sadness of it all

Treading water, for me, is a good thing

I breathe, I feel the sun, I am comfortable

As comfortable as a “get done” kinda girl can be standing still

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