Uncle Lewy

Living out loud with Lewy Body Dementia

a very personal journey. Matt, CJ and Sheba….

This started spontaneously, part therapy, part keeping our peeps informed. I am finding my voice, evolving in this. The perspective is very much from my, CJ’s, perspective; the caregiving wife.

subscribe to follow…..comment to join us…..each eye that reads, is appreciated. This is a lonely making disease. Sharing moments is a bit of a sole suave.

prayers

We need to sell the Virginia house

This is the season, holding on to it through the winter adds a complexity to life we just don’t need or want

The house has been so good for us

Protected us during Covid with its generous yard

Cradled Granny at night during her many visits

Allowed us to spend an amazing amount of time with her, celebrate her

The house enabled us to spend tons of time with Mom, to celebrate Mom too

We had large family Thanksgivings there, letting us bring together Granny’s family in her last few years

That meant a lot to me, a lot to her, a lot to many

There are pain memories in that house, the beginning of this journey we are on now

The moments of confusion, anger, hurt, sadness, dispair

There are living life memories there too, happy memories

Like when Granny and I tried to crab from the pier only to have all our bait eaten by the “ turtle monster”

(he was an old crusty ugly looking thing!)

Like when Ryland, Ken and Jim found old fishing poles and fished off the dock, Ryland found worm bait in the yard dirt

The morning I named Raphael the River Otter and then learned the story of Otter 841 from Barb

The huge hedonistic seafood fest we had one summer, what a delicious mess that was!

Launching from the beach on paddle boards and kayaks…….and Paul’s amazing kayak flips (how did he do that?)

Now, it’s time that house embraced a new family

Create new memories, cradle another, allow for coming together of others, enfold when hard times hit, shelter from storms, house celebrations

If you pray, please pray for that new next family to find our lovely spot and fall in love, to see themselves there

Pray they find peace, love, support and make new wonderful memories

It comes with great neighbors, the best

And Barley needs a new girlfriend…..so the new family should have a doggie too!

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