Uncle Lewy

Living out loud with Lewy Body Dementia

a very personal journey. Matt, CJ and Sheba….

This started spontaneously, part therapy, part keeping our peeps informed. I am finding my voice, evolving in this. The perspective is very much from my, CJ’s, perspective; the caregiving wife.

subscribe to follow…..comment to join us…..each eye that reads, is appreciated. This is a lonely making disease. Sharing moments is a bit of a sole suave.

his eyes

His eyes are glassy now

A soft cashew color

He looks at me intently, over the dinner table

Slightly hooded

The hooded look used to be the prelude, warning sign of a bad coming

Something I did that upset him

Something I didn’t do that upset him

An inbound Uncle Lewy gut punch

He looks at me

And looks

How fast is that brain machine working?

What is he thinking?

Is he thinking at all?

I don’t know the right inquiry question, so I just smile, assume he is thinking a nice thought

Hope for the best.

His eyes once looked up at me from just below on a Mt Tam trail

His mouth once said: “you just stole my heart again”

Will his eyes and mouth ever team up to send that message to me again?

Sometime I see him backing away from me….in his eyes

Uncle Lewy has him by the hand and won’t let him go, tugging him down this foggy road, away from me

His eyes……

I see pain, confusion there

Things I don’t know how to fix

It hurts my heart, really hurts

2 responses to “his eyes”

  1. bellefoxblogger Avatar
    bellefoxblogger

    💔 thank you for sharing such vulnerability in these blogs.

    Liked by 1 person

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  2. Eric Avatar
    Eric

    Thanks for sharing your world with us. I know just how hard this journey has and will be for you. I see such amazing love and compassion in your messages, and they are so treasured to us all; letting us in to this, your most vulnerable place. We are with you always. We love you and Matt so much!

    Liked by 1 person

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