Uncle Lewy

Living out loud with Lewy Body Dementia

a very personal journey. Matt, CJ and Sheba….

This started spontaneously, part therapy, part keeping our peeps informed. I am finding my voice, evolving in this. The perspective is very much from my, CJ’s, perspective; the caregiving wife.

subscribe to follow…..comment to join us…..each eye that reads, is appreciated. This is a lonely making disease. Sharing moments is a bit of a sole suave.

boiling frog

There is this saying, story, about a frog that gets in a pot of cool water

The water heats up slowly

The frog realizes it’s boiling, she is boiling….it happened so slowly she didn’t realize it

I changed the he to a she….I can relate

Days come and go, things happen

We don’t live a fast paced life now, no, it’s pretty slow

Usually we don’t need to get up and go

Only sometimes, there is a plane to catch, scheduled doctors visit, early departure for a drive to Bend

Mostly, we get up when we want

I usually get up first, make coffee

Journal, read, catch up, let the dog out

We are blessed to be able to live this way

So back to the frog…….

The last few weeks, my patience was wearing thin

Velvet gloves we’re getting dirty, misplaced

My frustration was zeroing in on Matt

Thank God for Corny and Barb

They made time to come stay with Matt so I could get away

They both live full lives

Places to go, kids to engage with, mountains to climb, oceans to swim, life of their own to live

They made time for us

I am so grateful

The frog……

I got out of the pot as it was heating up, got out before it was too late, before I boiled

Beth joined me, we spent time in a different environment

Endulged as we girls wanted to do, together

Massage, salt soak, poolside lunch

Conversation, girl time, sisterhood stuff

So grateful she made time

Our time together ended around 5, I was left to my own thoughts

I am not afraid of solitude amongst others

My thoughts and my journal kept me company

I am learning how to go deeper and deeper into my own thoughts, shooing away the distractions of this social media, 24/7 News cycle world

This morning I went on a bike ride

One speed cruiser

Peddling through serene neighborhoods

Bike path passing vineyards

Construction

Construction everywhere it seems these days

Cool wine country air

Fog thinning like a series of curtains hiding the blue sky

I thought about how this time needs to refill my cup that has run low

Bring the water temp back too cool before I jump back into the pot

Work till I got things done has always been a default of mine

Turned me into a workaholic it did

But now is not that kind of time

Stay the course

Keep the velvet gloves on, clean

Absorb the hits Uncle Lewy lands

But don’t blame Matt

This is unimaginatively harder on him……

One response to “boiling frog”

  1. karen09dccf5e6f Avatar
    karen09dccf5e6f

    Your blog is amazing…. so honest and true.

    I can speak from experience, the blog is your friend. 🙂

    Ps You are also a great writer!

    Sometimes I laugh, and sometimes tears fall, but I always keep reading!

    Liked by 1 person

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