Uncle Lewy

Living out loud with Lewy Body Dementia

a very personal journey. Matt, CJ and Sheba….

This started spontaneously, part therapy, part keeping our peeps informed. I am finding my voice, evolving in this. The perspective is very much from my, CJ’s, perspective; the caregiving wife.

subscribe to follow…..comment to join us…..each eye that reads, is appreciated. This is a lonely making disease. Sharing moments is a bit of a sole suave.

Eyes & ears everywhere

I was working upstairs in my office

My internet stopped working

Everything is now in the cloud because we moved, it was the easiest way

Matt & I are taking today to rest

There have been 2 days where he may have over exerted

Matt’s back is hurting, probably from all the moving we did a week or so ago

Why is the internet out?

I walk to the master bedroom where the modem is

Its gone, not where it should be

The cords are there….

Hey Matt, can you come join me?

What happened to the white box that used to be here?

I took it away.

Why?

I didn’t want it listening to me in bed…..

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