Uncle Lewy

Living out loud with Lewy Body Dementia

a very personal journey. Matt, CJ and Sheba….

This started spontaneously, part therapy, part keeping our peeps informed. I am finding my voice, evolving in this. The perspective is very much from my, CJ’s, perspective; the caregiving wife.

subscribe to follow…..comment to join us…..each eye that reads, is appreciated. This is a lonely making disease. Sharing moments is a bit of a sole suave.

If I publish

If I publish, share these writings in some form

There must be white space

A lot of it

Distractions removed

Pages turn slowly

Reflection

Allowing sensory response, allowing that response to be noticed

digested

converted to realization

whatever that means to the reader

Slowing down

Focusing on the art of description has been powerful to me

Not because it may change someone else

But because it’s changing me.

I don’t know where this is going

I do think about that

I am such a creature of the future, I can’t help it

Now, I am ok with the unknown…..

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