Uncle Lewy

Living out loud with Lewy Body Dementia

a very personal journey. Matt, CJ and Sheba….

This started spontaneously, part therapy, part keeping our peeps informed. I am finding my voice, evolving in this. The perspective is very much from my, CJ’s, perspective; the caregiving wife.

subscribe to follow…..comment to join us…..each eye that reads, is appreciated. This is a lonely making disease. Sharing moments is a bit of a sole suave.

other people

There are a few recurring characters

  • 2 little girls
  • some guy named Mark

It often starts with:

how long before I need to move out?

You should be ashamed of yourself!

Where is the title to the house? Is his name on it?

Our relationship is deteriorating…..

There is no special time and place for this

It’s just lands

like a sucker punch to the gut

doesn’t matter what I am doing

Matt’s distress is fully ripened

Juice is oozing everywhere

They say: DARE: don’t argue reason or explain

Bullshit

He is in distress

So am I

If I play along, it only makes it worse

Things go better when I remember to say:

Honey, if I thought you were having an affair and conspiring behind my back to take all my assets, I would be upset too. So I understand.

Honey please know, there is no Mark and your assets haven’t been stolen. The house is in your and my name. Nothing has changed.

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