Uncle Lewy

Living out loud with Lewy Body Dementia

a very personal journey. Matt, CJ and Sheba….

This started spontaneously, part therapy, part keeping our peeps informed. I am finding my voice, evolving in this. The perspective is very much from my, CJ’s, perspective; the caregiving wife.

subscribe to follow…..comment to join us…..each eye that reads, is appreciated. This is a lonely making disease. Sharing moments is a bit of a sole suave.

My respite

I shower outside

I take my robe off and feel the sun caress my back

It’s like a golden goddess is saying I love you

Rays permenate thru my skin to my soul

I want to linger here, in this moment of being loved by the sun

The sun understands me

The sun does not ask anything of me

The sun doesn’t hide things from me

The sun caresses me, gently

I have always loved her, the sun

You can tell when we have been hanging out together

She changes me from stark, sickly white to a sun kissed golden hue

That first moment before I take my outdoor shower is life

it’s love

it’s hope

it’s happy

it’s light

it’s everything to me

it’s my respite

Leave a comment