Uncle Lewy

Living out loud with Lewy Body Dementia

a very personal journey. Matt, CJ and Sheba….

This started spontaneously, part therapy, part keeping our peeps informed. I am finding my voice, evolving in this. The perspective is very much from my, CJ’s, perspective; the caregiving wife.

subscribe to follow…..comment to join us…..each eye that reads, is appreciated. This is a lonely making disease. Sharing moments is a bit of a sole suave.

Does it matter?

Does it matter Matt wears the same clothes day after day?

Does it matter that he used to wear shorts as long as possible, now he wears pants in the summer?

Does it matter that he spends a good part of the day pulling his pants up and fumbling with his belt?

Does it matter that I should probably get him drawstring pants, but I haven’t yet?

Does it matter that I sit on my butt, in this chair, with a pillow supporting my journal, blanket on my lap….and I don’t want to leave?

I feel safe here

I feel in control of my presence

I feel I am doing what I want…not what I need to do

Does it matter Matt fed the dog 2 times this morning?

Does it matter I can’t often understand what he says?

Does it matter I really try to?

Does it matter he doesn’t seem to try to make it easier for me to hear him?

What matters?

We are safe

We are together

One response to “Does it matter?”

  1. Raw, tender, real.

    I am so grateful my brother has you by his side.
    He may not be able to express this to you but I know he is grateful too CJ.
    This blog is yet another gift you are giving us.

    My heart is full while my eyes weep.

    Liked by 1 person

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