Uncle Lewy

Living out loud with Lewy Body Dementia

a very personal journey. Matt, CJ and Sheba….

This started spontaneously, part therapy, part keeping our peeps informed. I am finding my voice, evolving in this. The perspective is very much from my, CJ’s, perspective; the caregiving wife.

subscribe to follow…..comment to join us…..each eye that reads, is appreciated. This is a lonely making disease. Sharing moments is a bit of a sole suave.

Uncle Lewy wasn’t invited

But he came anyway

There is no way to kick him out

So I have to accept this reality

He is a bad influence on Matt

Uncle Lewy wasn’t invited

I want to tell him to leave

But I know he will take Matt with him if he goes

I can’t bear that

Uncle Lewy wasn’t invited

He turns the gas stove on and scares me

He puts things away in the wrong places

like trash

wet rags

then I find them days later, stinky

Uncle Lewy wasn’t invited

I just want him to go on vacation, now

So I can have my Matt back

3 responses to “Uncle Lewy wasn’t invited”

  1. Love you guys to the moon and back.

    Liked by 1 person

  2. Jen & Chad Robins Avatar
    Jen & Chad Robins

    We Love you both so much 💕💕

    Liked by 1 person

  3. Sending prayers and lots of LOVE!!!!

    Liked by 1 person

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